Surgeon Follow-up

Yesterday Matthew had his first follow-up visit with the surgeon. She felt all of his post op stuff looks good and nothing to be too concerned with at this point except for one minor thing...We have been into the office a couple of times in the last couple weeks due to his abdominal incision having a bit of an issue. They say that his body is having a reaction to the sutures. They fins this kind of odd since it is almost 2 months post op. They have been wanting to avoid putting him on antibiotics, but decided this was necessary at this point. They were not having me put any ointment or anything on it and now they are. So hopefully all of this will make his incision heal like it should have.

 I also had to replace his G-tube by myself yesterday.( with the instruction of the surgeon) It was not as bad as I was anticipating. It was really pretty simple. They wanted to make sure I know how to do it so if it ever comes out. I now feel confident that I can change it if I ever have to in an emergency.

We had a peditrician appointment last week and she does not want to see him until he is 4 months. I am taking that as a positive thing. She does call every week to check on him. She just wants to make sure he does not go into the office any more then absolutely necessary.

We have our first follow up appointments with the pediatric cardiologist and pediatric pulmonologist in two weeks. I am very curious as to how those appointments will go. I have met the cardiologist briefly at the hospital but we have not met the pulmonologist. I am hoping that they have positive things to say. These are the doctors that will let us know how long Matthew will be on oxygen and how many medications he still needs to be on.

As you can see I stay quite busy with just Doctors appointments, not to mention all the home care we are receiving. We are currently receiving in home care for the following..Nursing, Physical Therapy, and a dietitian. Nursing comes once a week and the physical therapist is coming twice a week. The therapist is working with Matthew trying to get him to be able to eat orally. She says it looks like it is going to be a long road to get him to where he needs to be. That seems to be the story of his life.  Speaking of in home care I will have someone arriving any minute now so I need to say see ya later..

Jaime