Today we went to the Pulmonologist for our regular 2-3 month check up. We have the possibility to see a different Doctor each time we go, because they call it a clinic and you never know which Doctor you will get. We have had the same Doctor for most of our visits. So today was no different we saw a new Doctor, which I ended up really liking, so I hope we can see him again. He was VERY happy with what he saw in Matthew. ( a little back up first...) Last visit they decided to keep Matthew on oxygen until his respiration rate slowed down. He has always had a faster then "normal" respiration rate.
Well today Matthew's respiration rate was great and has been. The new doctor was very impressed considering Matthew has been fighting a cold. He said that the fact he had a cold and it didn't really bother him was a great thing. So he ordered a sleep study to see if we can get rid of the oxygen. YAY!!! I am not at all nervous about this, as each time he has been in the hospital lately he takes his oxygen off and still saturates at 98-100%. I know the sleep study is a lot more involved, but if they are looking if his saturation levels drop I can tell them that they do not. So I don't want to get my hopes too high, but this did excite me quite a bit. Wow, what would it be like to NOT have to haul around oxygen? I am pretty sure Matthew understood the doctor, because since we left there I can not keep his oxygen on him. Little Turkey...We are tentatively scheduled for a nighttime 10 hour sleep study, but the doctor was telling me he wanted a nap study, which is done during the day at nap time. So we will see which one it is for sure. Then we go back in June and they will decide if he can come of oxygen or not. So we have a few more months with it, but I think I finally see that light at the end of the tunnel.
Other then that things have been pretty quite around here. Matthew did great in his last surgery and was able to come home that day. He has recovered really well, all except for his cold. He seems to be getting over that now. We all had it, but ours was only about a 4-5 day thing. After several breathing treatments and steroids we managed his cold at home. Thank the Lord.
We just have all of our regular routine visits coming in the next few months and I am hoping it stays that way.
Even though the new Children's Hospital is opening section by section, I don't really need to go see it. I can see it from the outside as we drive by going to doctors. I am totally okay with that.
Here's to hoping June brings GREAT News,
Jaime
