I just realized that it has been quite awhile since I have posted. Sorry about that. I guess no news is good news for the time being. Matthew has been doing really well so far. He did have to have two minor surgeries on his abdominal incision. I have been fighting his incision since he came home from the hospital. I think in the four months he has been home he has only missed about 4 weeks of not going to see the surgeon. They finally decided to go in and see if they could find any sutures in his incision. The first surgery four weeks ago they did not find any, but that spot is now healing...They went in about a week and a half ago to do the other part and they did find a suture that time. Now both spots are healing... YAY!!!! I can not tell you how happy this makes me. I was afraid that I was going to be fighting this forever.
We had his monthly follow up appointments with all of his specialists and they said he is making great progress. Unfortunately we are moving away from our hometown here in Boise and moving to southern California, so we will have to find ALL new doctors for Matthew. This makes me a little nervous. So if any of you read this blog and are in the So Cal area and have good doctors I would take any and all recommendations of doctors. If we were not moving the doctors would start to wean Matthew off of his oxygen and his meds. That was great news to hear. They are going to leave him on everything and let the Doc's in CA decide what they want to do.
Matthew continues to gain weight, thanks to him finally tolerating his formula. He is still below the 10th percentile for height and weight, but he is making good progress. He is still not taking anything by mouth, I did take him to have an eating evaluation today. They said to just forget about trying to give him formula by bottle and go straight to purees. So we can start to see if we can get him interested in food this way. I really hope that he likes real food and decides it is a good thing. He is okay with things in his mouth, just not liquids. You can put toys or fingers in his mouth and he tolerates that just fine. He loves to chew on his own hands. So his oral aversion is not as severe as they were originally thinking. More good news. So overall He is doing really good. We just need him to continue to tolerate feeds and grow. Hopefully we will continue to have more quiet times from the blog. Because we like the no news is good news. If I would have something to post everyday I am not sure I would like that situation. So until I have more news for any of you take care.
