Wednesday, November 16, 2011

A rough weekend

 I am not sure where to start, so I guess I will start on Thursday of last week.
Matthew was scheduled to have a minor surgery to have a central line placed in his chest on Friday. This is just a more permanent IV site. In order to do this they were going to have to give him some heavy sedation so he was going to have to re intubated. (put back on the vent) Just for the surgery. Well he ended up taking a dive late Thursday night Friday morning. He was put back on the vent and was at 100% oxygen on the vent and his oxygen saturation was dropping. That is not a good thing since he was already at 100%, there is no where to go past 100. So it was really scary watching all of this. The Doctor was equally as worried and was not sure why he was doing what he was doing. So not only were we concerned the Doctors reaction was not helping. So we spent about 3 1/2 days on pins and needles. Then on Monday this week the Doctors changed shifts and another Dr. came in and had new ideas on what they could try. So they did a bunch of  tests on him. (This is a daily thing) They found that he had severe pulmonary hypertension and also pneumonia (which is not good for him). With this diagnosis they were able to start different medications and try to treat each thing a little differently. As of today (Wednesday) he is doing quite a bit better. His o2 needs are down and he is not d-saturating as bad as he was. So we are just hoping that he is going down the right path now. We don't want to get our hopes too high. They say that with these kids (CDH kids) you take one step forward and two steps back. So we just continue to ask for your prayers for our little fighter. All the nurses and Doctors say he is feisty and stubborn. They say that is how they like the babies to be.

I hope I was able to sum up a little about what is going on with enough information, but not too much to confuse everyone. It is hard to try and explain EVERYTHING they are actually doing with him. It would take up 4 pages if I would tell you all that is going on with him. He is on crazy amounts of medication for different things, but that gets really confusing. So I will leave all of that out. If you have more questions or anything feel free to either email or Facebook me. I will try to get back to you when I have a few free minutes. Thank you for all the messages of support that we have received.

Love,
Jaime

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