Questions???

I know that some of you have questions that I probably have not answered on here yet, so I thought I would answer some of them.

When does Matthew get to come home- We do not know and neither do the Doctors. The best answer for that one is when he is healthy enough to come home. Which at this point looks like it will be weeks to months.

Have you been able to hold him yet- No, we have not been able to hold our little boy. We were not even allowed to touch him this last weekend. We went about 5 days without touching and barely being able to look at him. He is in a very fragile state right now.  When we do touch him it is just putting his little hand around our fingers. or we can hold is feet and head at the same time and that is pretty much it.

How serious is CDH- CDH is a very serious defect. It not only effects the lungs, but all the other organs and anatomy as well. The lungs are a huge part of it, but so it the bodies whole vasculature system. So Pulmonary hypertension is a huge problem in CDH kids. (PH is basically high blood pressure in the lungs).

Will he live with this the rest of his life- Yes, this is something we will have to deal with his whole life.

He may come home with feeding tubes, on oxygen and on a whole slew of drugs. We just don't know at this point.

I hope this helps a little. There are a bunch of sites that you can go to read up on CDH. They explain the basics of it. Here are a couple links you can go to to find good information.

http://breath-of-hope.blogspot.com/

http://fetus.ucsfmedicalcenter.org/cdh/

http://www.chop.edu/service/fetal-diagnosis-and-treatment/fetal-diagnoses/congenital-diaphragmatic-hernia-cdh.html

All of these sites will give you a pretty good overview of what CDH is.

As we are learning there is a lot more to it then what all these sites say, but they are good information non the less.