What's up?

I thought is was time for an update:

Matthew has been doing great. He has been making great progress in therapy. He is almost sitting unassisted...he can sit for about 30-45 seconds without falling. He has started talking and doing some baby sign language. He says about 10-15 words, which I didn't think he would do for awhile due to him not using his mouth to eat. I have heard you need to use all the muscles needed to eat to talk. So I was a little surprised he is talking as much as he is. As stated above he is still not taking anything by mouth. He goes to OT twice a week and we work on feeding him, but he has no interest in food. He will put ANYTHING else in his mouth, but not food. I am hoping that it will just click with him one of these days. He has started drinking water out of a cup so that is great progress. He only takes about 5-10 mls at a time, but at least it is something.

A few weeks ago I was changing his diaper and noticed that his left testie was looking very swollen, so we took a trip to the pediatrician and she said he had an inguinal hernia. Of course he did. Why wouldn't he. Everything that seems to go wrong with his results in a "hernia". So we scheduled an appointment with a urologist and found out he needs surgery to fix it. With that being said surgery is scheduled for this coming Tuesday February 26th. I am hoping and praying it will be an outpatient procedure, but they are making sure he has a room in the ICU just in case. Since he has not done anything in life normally they do not want to take any chances. I am hoping that this does not set him back any at all. I just want to see him keep making great strides in his development.

After we went back to therapy after the first of the year, they reevaluated him and gave him goals. He is already reaching his goals for OT and he is making progress towards his goals for PT. I am so proud of all the progress that he has made. All of his hospital stays and illnesses set him back quite a bit. It was very hard to watch him regress on all of the things he was doing. I am keeping a very positive outlook on all of this and treating it as a learning experience. I just hope there is not a next time for needing any of this information.

I will update after his surgery..

J