A Lot has happened since my last post. First off we packed up our family and moved to Southern California from Boise, ID. This was a hard decision as almost all of our family is in Boise. We just felt that this was the right decision for our family at this time in our lives. Jim traveled about 50% of the time, with Finn getting older and noticing when daddy is gone and Matthew's extra needs we felt that he needed to be home every night for them. That is what this move has allowed, daddy to be home every night and not having to leave.
One of the things that made it a little harder to think about was finding ALL new doctors for Matthew. We had a great team of Doctors in Boise that were all in the same building, in the same wing. Talk about convenient. He saw a surgeon, and pulmonologist and a cardiologist all in the same place. He also had PT and OT weekly that came to the house. It has been quiet the experience getting New doctors lined up. I finally got an appointment with a pulmonologist here and he refered me to the other doctors that he will need. We saw the Dr. on Monday and he thought Matthew looked great. He said he would have taken him off his oxygen if he had a recent Echo and x-ray. So I have those scheduled in two weeks. I am hoping that his pulmonary hypertension is completely gone. Since he has been out of the NICU he has had 3 or 4 Echo's done and he still has very slight PH. I am just hopeful that it is gone. We see the pulmonologist in 6 weeks so we will have to be patient and see what comes of the echo and x-rays and what he says. I did ask the Dr if we needed a pulse ox at home and he said no. That was a relief to not have to worry about. We had one in Boise, but we had to switch Medical supply companies so we had to get all different stuff. A pulse ox was not part of the supplies the new company supplied.
Matthew has been doing great health wise. He is making slow but steady progress with his developmental milestones. He still does not sit up and he is 7 1/2 months old. I am not worried about that as much as his feeding issues. He is still very orally aversive. I give him little tastes of rice cereal or fruit like applesauce. He will take little bits of it then he gags after a few bites. Jim gave him some ice cream the other day and he shuddered so bad. I guess he is not like his dad that way, not an ice cream lover.
Matthew has the best personality, he is the happiest, sweetest little boy. He smiles all the time, especially when big brother Finn is around. He can not get enough of him. They are too cute together They both just sit and laugh and play all day long. It is the best feeling to just sit and watch your kids and the pure unconditional love they have for each other. It just melts my heart.
I think I have caught up this blog for now. I will post after his other Doctor appointments and what I find out about his oxygen.
Jaime
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