Last Monday morning I went to get Matthew up and he was soaking wet. I checked his feeding tube adaptor and everything wast closed properly. So I thought that maybe he had had a VERY wet diaper. I went to pick him up and the top of his pajamas were soaked as well. I immediately opened him PJ's and saw his feeding tube laying on his chest. It has somehow some out during the night and he never mad a sound to let us know he was getting soaked. I called the surgeon's office and they told me to meet them at the ER. So we got to the ER and got checked into a room and my phone rings, It's the surgeon asking what room we were in so I told her and she appears about 3 seconds later. She is an on-call surgeon that is from California. I have actually met her before so I knew who she was and she knew Matthew. The nurses in the ER look at her like she is crazy because they do not know who she is. Then the next thing we all know is that Jim and I are holding Matthew still while the Dr is trying to get his hole reopened to insert a new g-tube. She looks around and ALL the nurses had abandoned us. She said I see the nurses didn't want to stick around and they don't even know who I am. Made us feel real good about that hospital. (It is a different one then the one he was born and in the NICU) The Dr finally got the hole reopened and a new tube in and we were on our way. The whole process only took about an hour. Pretty impressive for an ER visit.
We get home and Matthew is still pretty fussy all day and that night he wouldn't sleep anywhere but in my arms in the recliner. Needles to say neither one of us got much sleep. He cried most of the night so the next morning I called the surgeons office back and they told us to come in. They were not seeing patients that day, but they would see us. We got the office and the Surgeon who had done all of Matthews previous surgeries was the surgeon. He looked at the new button (g-tube) that was put in and said he thought it was too tight so they decided to put a different kind of tube in. He had a mic-key g-tube and they wanted to put a mini in. This requires him to go to the PICU to have this done. We thought about it and decided we didn't want to go through anymore sleepless nights due to his discomfort, so we headed to the PICU at the hospital. We got checked in there and the surgeon and his NP showed up a few minutes later and got the new button put in. We were then sent on our way. This process only took about 1 1/2 hours total. Not too bad considering they actually had to admit him into the hospital. Shortest hospital stay on record I think. I hope they stay that way. We got Matthew home and he was much more comfortable that day/night and continues to be. It appears that he needed to tour the other hospital in town. He needed us to see the ER and the PICU in two days. Sure glad he decided to do that. :)
He has been doing fine since then. We have a follow up appointment with the Cardiologist and Pulmonologist next Monday so I will let you know how those appointments go. We are hoping to start to see his Pulmonary Hypertension going away. He still has a very mild amount so hopefully they will see it is getting better.
I am also hoping Matthew doesn't decide that he needs to see any other Doctors anytime that they are not scheduled, But we all know CDH babies have a mind of their own and will do what they want.
Until the next update,
Jaime
No comments:
Post a Comment