It looks like Matthew is on the right track. He has done amazingly well this last week. He has recovered from his surgery with flying colors. He is being weened off of his morphine slowly. He has become a little addicted to it and is having some withdrawls. They will ween him slowly so they shouldn't be too bad. They are also weening him of his high flow oxygen. Then he will just be on regular oxygen. He can come home n regular oxygen. He is very alert most of the time we go up there. The nurses say he is awake most of the day. He slept last night so I guess that is a good thing. He is getting tired of just laying in a bed, so they have put him in a swing and in a bouncy seat. He likes them both. He also loves to look at his mobile above his crib. We brought it in for him. I am sure the nurses are tired of the one and only song it plays. His feeds are starting to go a little better. They have started to give him 20cc's of milk and are only getting a little bit of residual back. They feed him through a feeding tube that was placed in his stomach during his last surgery. Once they get his stomach to empty and ween him off the morphine and high flow oxygen then he can come home. Jim and I are hoping that is before Christmas. One of his nurses today said she is going to be gone foe two weeks and she is afraid Matthew will be gone before she gets back. I sure hope she is right. We have been able to hold Matthew everyday since last Monday. We can go and take him out of his bed anytime we want and hold him as long as we want. It is so nice to be to that point with him. It was heart breaking to not be able to hold him for the first 26 days of his life. He loves to be held and rocked too. The nurses and respiratory therapists take turns holding and rocking him. He has a big boy cry that makes them all want to hold him. They are so used to the tiny pre term baby cry, that a big boy cry gets their attention. He is in good hands where he is at and everyone thinks he is just too cute. I would have to agree with them. :)
I will keep you updated on the possibility of bringing Matthew home. We can just hope and pray that it is soon. However as much as I want him home, it will be a little scary. He will for sure be coming home on oxygen and also with a feeding tube. He might be coming home with his broviac IV as well. (central line in his chest) He could need extra IV nutrition on top of the milk that gets fed through the feeding tube. So with all of that it will be a lot more work then just bringing a healthy baby home. But hey I will take it.
That is all the information I have for now.
Jaime
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